It's 1 in the morning and the room phone wakes me up. Chanel is crying and although I can not understand every word, I know what's wrong. As I run down the street to the Hospital, I call my mom. I tell her what Chanel told me, Isabella is getting worse. As I sit here, waiting for St. Mary's to transfer Chanel, Isabella is moving a little more than she was earlier. She is kicking a little bit, the way she would when she was only 30 weeks old. I can still remember her playfully kicking mommy's belly trying to get daddy's attention as Chanel would say. Her hand is finally open and she is holding my finger. It is killing me inside the more I think about things, like how I never got to hold her or play with her. It is 1:30 now, Chanel should be here any minute. My mind keeps flashing back to when we made the decision to come out East. Of course we were making the right choices, as hard as they were. CDH still has no known cause or cure, but we had to do something. We had to do anything and everything we could do to save Isabella. Chanel is here, it is 1:45 a.m. She is even more heartbroken than I am. She has gone through so much, and done even more to bring our daughter into this life. We are able to receive privacy and we both are left alone with our baby. We talk to Isabella, comfort her and comfort one another. It is now 2:30 and the doctors have just finished confirming what we already knew,that Isabella was a fighter. She stayed strong through everything that came her way. She was just too tired in the end. After another hour had past, we bathe her and they tell is it is time to let us hold her, which raises both our spirits greatly. It is not too long after they disconnect Isabella from any life support that she is in her mothers arms. I hold her a while, and a doctor comes to check her heartbeat. Her heart has stopped beating. She spent her last moments with the two people who loved her most. She is smiling, and that is the image I will carry with me forever. We love you Isabella, you will be missed dearly. She died at only 23 hours old.
About This Blog
Isabella Esmeralda Preston is the Daughter of Chanel Flores and Kyle Preston from Mesa, Arizona. Isabella was diagnosed with CDH October 18th 2011 at only 21 weeks old. After weeks of non-stop phone calls and research, Isabella was accepted as a candidate for Hydrogel Tracheal Occlusion surgery in St. Louis, Missouri. She underwent in-fetal surgery on December 10th, 2011 while still inside her mom and was born on January 7th, 2012 at 32 weeks old. 23 hours later on January 8th, Isabella passed away in her parents arms after a hard fight with Pulmonary Hyper-Tension. This blog was created in loving memory of our daughter and to raise awareness of CDH and the effects it has on families. Please feel free to leave comments or questions or click on the Contact Us link.
My heart breaks for you both.. What a perfect little child she is and so beautiful...She chose you two to come down to Earth to receive what she needed to, a sweet little body... Now, she will spend Eternity with her Heavenly Father and Jesus Christ.. knowing some day she will be with you as a forever family.. Now she waits for you ! My condolenses and love and hugs and Prayers to you and your families..
ReplyDeleteMay you feel much strength and love from all of us that care deeply for you.. Much Love Maxine and Mathew Arrington xxx
How Beautiful She Is! A Little Angel! My thoughts and prayers are with you Chanel & Kyle.
ReplyDeleteGod Bless You Love, Brenda
Chanel and Kyle, we're so sorry for the loss of Isabella and are grateful you got to hold her and love her before she left this earth. Our thoughts and prayers are with you all.
ReplyDeleteLove,
Uncle Calvin and Aunt Jane Payne
I'm Traci's cousin, Abe, and my wife,Grace, and I just wanted to offer a huge congratulations and our deepest condolences to you. We know the extreme joy and pain you feel at this time. We lost our little girl, Clara Ann, to CDH on August 5th, 2010. She was also born right at 32 weeks. We understand the intense heartache and pain you are going through right now and wish we could do something to lessen it for you. We have cried as we've read your experiences with Isabella. She's a beautiful little girl, and we're sure she and Clara are great friends and playing with each other right now. We also know that they will both always be with us and be a part of our lives. If there is anything we can do to help, please let us know. We love you guys and are saddened by your loss.
ReplyDeleteAbe and Grace
(You can contact us at gracepayne07@hotmail.com if you need anything.)
I'm so sorry Kyle. Both my kids were born prematurely so I understand the struggle of looking at them so tiny all hooked up to machines. I don't even want to imagine what you are going through but I hope that you will find peace.
ReplyDeleteYour friend always,
Kristin Scott Spencer
Chanel and Kyle my heart is breaking also. I am so deeply sorry for your lost I can not image the pain you both are in. After reading your (Kyle) blog I would have to say you both are going to have a strong little angle watching over you all.
ReplyDeleteI am so sorry again for your lost you both will be in my thoughts and prayers
Sonia