About This Blog

Isabella Esmeralda Preston is the Daughter of Chanel Flores and Kyle Preston from Mesa, Arizona. Isabella was diagnosed with CDH October 18th 2011 at only 21 weeks old. After weeks of non-stop phone calls and research, Isabella was accepted as a candidate for Hydrogel Tracheal Occlusion surgery in St. Louis, Missouri. She underwent in-fetal surgery on December 10th, 2011 while still inside her mom and was born on January 7th, 2012 at 32 weeks old. 23 hours later on January 8th, Isabella passed away in her parents arms after a hard fight with Pulmonary Hyper-Tension. This blog was created in loving memory of our daughter and to raise awareness of CDH and the effects it has on families. Please feel free to leave comments or questions or click on the Contact Us link.

Thursday, December 15, 2011

The Waiting Game

Toady we had an appointment with Dr. Vlastos and Dr. Yang to further monitor baby Isabella and review Chanel's condition after the surgery. They both performed ultra-sounds on Chanel to receive estimates on how much lung is proving to grow after the hydrogel placement. They both told us that the LHR (or lung to head ratio if you have not read the links provided) had increased from an astounding .8 to almost 3! Dr. 's Vlastos and Yang also noted the appearance of bright white areas that did exist before, suggesting growth of both the right and left lungs.They said the hydrogel is working better than they expected. Everything else checked out except for Chanel's cervix, which measured at 1 1/2 cm. The normal length of the cervix should of been in the ballpark of 3 or greater. They are afraid that pre-term labor is a possibility if they can not control her contractions. Chanel was prescribed a smooth-muscle relaxer and was asked to simply relax and stay in bed. This comes one day after we went back to downtown St. Louis to walk around and hangout all afternoon. Chanel is really tired, but like always, Isabella isn't. She keeps kicking, moving around and giving the nurses a hard time playing 'hide and seek' while they are trying to monitor her. It's so funny watching the Dr.'s look at ultra-sound and struggle with our baby as she moves, not allowing them to view the measurements they need. Besides that, we plan on staying inside the Ronald McDonald House this weekend. On Sunday, however, we will be in attendance at the Rams vs. the Bengals football game at Edward Jones Dome. Robert Quinn, a rookie from The St. Louis Rams donated tickets to the families here. As always, we ask everyone to keep praying for the baby. We still have to wait three more weeks to see if the surgery was effective, and we have to wait until February when they will preform surgery to repair Isabella's hernia. We thank you for all your support and prayers in behalf of our baby and us while we are on this crazy adventure.

1 comment:

  1. Preston- Our thoughts and prayers are with you. Isabella is a strong girl. Soon you will have her in your arms.

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